Each week, for the past 20 weeks, The Angry Moms has published “highlights” from complaints we receive from patients and families experiencing REMS-related interruptions and difficulties accessing clozapine treatment. Nothing has improved. Every week we receive the same stories of utter negligence associated with the clozapine REMS putting more lives at risk. Every week, more families are desperate to find a clozapine provider.
This week we are only sharing one submission - a poem sent to us by an anonymous author.
We don’t know who this mother is, but we want you to know: Mom, we hear you.
The Angry Moms
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“Poem By Patient Mom”
My son’s been sick for 5 years now
Hasn’t recovered somehow
Despite meds, MDs and such
Continues to be out of touch.
A river of tears, so much pain
Was told to accept he won’t change
Laughs and talks to people unseen
Stings each time I see him.
One day, I found the Daniel Team,
Laitman Protocol & Clozapine
Hope restored but not so easy
REMS, cost, test weekly.
Unable to start, waiting patiently
Please send me a prayer,
I’ll appreciate it dearly.
--- Anonymous Mother
Because of us not being able to get my son's clozapine, he has went into psychosis so many times! This is a cruel system. I am so angry watching my boy suffer.
This is an inhumane way to treat people who are suffering.
Nobody could possibly understand the suffering that is dragged on needlessly for years, or decades, because of the damage caused by the clozapine REMS, unless it happens to you.
After watching our loved ones be torn away from us by this terrible illness, they enter a world of torture and torment. Confused, not knowing what's happening to them, we turn to the "professionals". They tell us that "they'll have to ask for help themself", or "there's nothing we can do unless they hurt themself or someone else".
If, by some miracle, we figure out what's happening is called psychosis, and we're somehow able to get them treatment, it's usually far from optimal. Then, we're told "this is as good as…
Dear anonymous
You and your son are in my prayers. We are fighting for you and all the other families we hear from EVERY Single Day. We will not stop until people with schizophrenia have access to the life saving treatment they need and deserve.
Because of the difficulties surrounding rems and clozapine where we reside, my son will not receive the best treatment for schizophrenia to eliminate his psychosis, depriving him of a somewhat normal life.
Somewhat the same as the writer of the poem’s love one.